Page updated - 01 April 2011
Epilepsy
is a tendency to have recurrent seizures (fits). There are many different
types, depending on what part of the brain is affected. During a seizure
some people lose consciousness for a few minutes, whilst others experience
unusual sensations or movements. Epilepsy is not a mental illness or a
psychiatric disorder. Many of our problems are a result of other peoples’
lack of knowledge and understanding.
Epilepsy Action first started in the Sudbury area in 1997. I was having seizures 3 or 4 times a week and my confidence was low. What I needed was to talk to another person with epilepsy. My husband placed an advert in the local papers and with a few replies, the first official meeting was held. After six months we joined the British Epilepsy Association (B.E.A), the registered charity. Epilepsy Action is the working name of the National Charity.
We talk quite openly about living with epilepsy, sharing experiences, and giving support and advice. We also have social evenings, quiz nights, meals out etc.
In 2008, I did an accredited training course, which allows me to do presentations to other organisations, schools etc and also enables me to support people/ carers with epilepsy on a one to one basis or as a group session.
The group has videos, books and many leaflets on the subject.
For further information contact, me, Nicki (Chairperson/AV) on (01787) 880436.
Nicki Garrard - Epilepsy Action – Sudbury
01 April 2011